* The patient stories published here are all those subject to the patient's consent.

Bogusz Ryszard Fiszer-Batten Disease-(Poland)

Name : Bogusz Ryszard Fiszer Sex : Male Nationality : Polish Age : 2Y 4M Diagnosis : Batten Disease Before treatment : The patient was normal when he was born. He could speak more than 10 words including mama and papa, his intelligence ability and l

Danila Mayorchik-Batten disease-(Russia)-Posted on June 13th, 2017

Name : Danila Mayorchik Sex : Male Nationality : Russian Age : 4.5Y Diagnosis : Batten disease Date of Admission : Feb. 5th, 2017 Treatment hospital/period : Wu Medical Center/13 days Before treatment: The patient was normal when he was born. He wa

Yana Ruban-Batten disease-(Kazakhstan)

Name: Yana Ruban Sex: female Country: Kazakhstan Age: 5 Diagnosis: Batten disease Days Admitted to the Hospital: 35 Two and a half years ago Yana had a serious fall and suffered a grand mal seizure. Her family took her to the local hospital and she w

Santiya -Batten disease(Argentina)

Name: Santiya Sex: Male Age: 5 Country: Argentina Diagnosis: Batten disease Beginning Treatment Date: 2009-10-12 Admitted Days: 35 Medical History: santiya started having difficulty concentrating and was hyperactive at 3 years old. The symptoms showe

Benjamin-Neuronal Ceroid Lipofuscinosis-(Chile)

Name: Benjamin Marcelo Marin Retamal Gender: Male Age: 8 Country: Chile Diagnosis: Neuronal Ceroid Lipofuscinosis (Type2) Number of days admitted: 37 Medical History: Benjamin was born normally, with no medical history of dystocia or asphyxia. Before

Maresu Luis Eduardo-Batten disease-(Argentina)

Name: Maresu Luis Eduardo Sex: Male Age: 7 Country: Argentina Diagnosis: Neuronal Ceriod Lipofuscinosis Medical History: Maresu started having severe epileptic seizures when he was 3 years old which lasted about 30 seconds in duration. He received t

Evangelina Sharashkina-Batten disease-(Russia)

Name: Evangelina Sharashkina Sex: Female Country: Russia Age: 6 Diagnosis: Batten disease Beginning of treatment: April 4th, 2009 Medical history: 2 years ago, at 16 months old, the patient was diagnosed with pneumonia, had a fever, and paroxysmal l

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